Original articleRoom for Improvement: Patient, Parent, and Practitioners' Perceptions of Foot Problems and Foot Care in Juvenile Idiopathic Arthritis
Section snippets
Design
A mixed qualitative methodology was selected as a pragmatic approach to exploring perceptions of foot problems and foot care in JIA. The mixed qualitative methodology included focus groups, face-to-face interviews, and telephone-based interviews. An interpretative phenomenological approach (IPA) was adopted to explore perceptions of foot problems and foot care for people with JIA.14 An IPA is centered on the exploration and understanding of lived experiences and can be applied to answer
Participant Data
Four adult patients (1 man, 3 women; aged 17–33y) and 2 parents (both mothers), 1 of a 7-year-old girl with JIA, and 1 of a 9-year-old girl and 17-year-old boy with JIA consented to participate. Three pediatric rheumatologists (1 man, 2 women), and 6 health professionals (1 man, 5 women) consented to participate. A total of 15 individuals had participated when thematic analysis saturation was achieved (summarized in table 1). Six reoccurring themes emerged from the data.
Pain
When respondents were
Discussion
Patients', parents', and care providers' views of foot problems in JIA are that they appear to impact significantly on mobility and the ability to perform routine day-to-day activities, with pain being the most important foot-related disease manifestation. It would appear that foot pain can lead to feelings of depression, isolation, and a reduced ability to participate in everyday activities such as attending school/work, socializing, and physical activity. Previous research has demonstrated
Conclusions
Exploration of participants' perspectives and experiences of a foot care service have highlighted that convenient referral pathways, short waiting times for initial consultation, patient compliance, and evidence of effectiveness of FOs are seemingly important issues to address. Emphasis on improving pain levels, mobility, ability to perform routine daily activities, and footwear choices appear to be key outcomes for measuring therapeutic response to foot-related interventions.
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In-press corrected proof published online on Sep 7, 2012, at www.archives-pmr.org.