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07-11-2017 | Systemic lupus erythematosus | Review | Article

The Role of Patient-Reported Outcomes in Systemic Lupus Erythematosus

Current Treatment Options in Rheumatology

Authors: MSc, MD Andrew Kwan, MD, MACR, FACP Vibeke Strand, MD, PhD, FACP, FACR Zahi Touma

Publisher: Springer International Publishing


Purpose of review The use of patient-reported outcomes (PROs) is increasing in rheumatology and other chronic diseases, with growing evidence of its utility in complementing physical and biochemical assessments to guide management of complex conditions, such as systemic lupus erythematosus (SLE). This review describes currently utilized PROs and their use in SLE, and highlights areas of unmet need that require further attention.
Recent findings Existing PRO instruments, both generic and SLE-specific, assess a variety of health-related quality of life (HRQoL) and, to a lesser extent, non-HRQoL domains that are frequently reported health issues in SLE patients – although there remain other important aspects that are not routinely assessed, including the ability of patients to participate in social roles and relationships.
Summary PRO domains pertinent to SLE patients will continue to be identified and these areas of unmet needs will have to be addressed by novel and existing PRO instruments.

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